Prostate Cancer Patient Voices
Prostate Cancer Patient Voices
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  • Elevated PSA
    • Elevated PSA
    • Changes in PSA
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  • Life Beyond Diagnosis
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    • What is a Clinical Trial?
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    • Common Myths
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Cancer Patient Voices
  • Patient Journeys
  • Elevated PSA
    • Elevated PSA
    • Changes in PSA
    • Risk Factors
    Lauren Engel, NP on Changing PSA levels

    Lauren Engle, NP

  • Diagnosis
    • Understanding Your Results
    • Treatments
    • Recurrence
    • Progression

    Shared Decision Making

  • Life Beyond Diagnosis
    • Coping with Side Effects
    • Mental Health
    • Sexual Health
    • Incontinence
    • Physical Health

    Living with PCa

  • Clinical Trials
    • What is a Clinical Trial?
    • When to Consider?
    • Common Myths
    • Finding a Trial
    A Clinician’s Perspective: Clinical Trials

    Watch Now

  • Resources
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    Caregiver Support

Voices of Experience, Stories of Strength

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Henry Cornelius: I was diagnosed August 13th, 2021 with Gleason 9, PSA 42, prostate cancer.

Porter Freeman: Being in law enforcement, the Gleason scale, a one would be like jaywalking, and 10 is a double homicide.

Bennie Johnson, Jr: In 2005, Dr. Green diagnosed me with the prostate cancer. He asked me at that particular time whether or not I wanted to be treated or we wanted to let it go to see how fast it grows or whatever. But I told him, "No, I'll take the five years and we'll see what happen." 2010, I went to the cancer center, well right then, the radiology and they told me that I had the cancer and I was going to have to be treated.

Brad Goverman: I was not shocked at the diagnosis. I was mentally prepared for it given my family history, and following my PSA levels.

Richard Lasus: I had a family history, so I had my PSA check on an annual basis. It had run in the two to four range for a number of years, had gone up to six.

Malcolm McKay: Father, grandfather, brother, my dad's brother, many people have had prostate cancer.

Rickey Lee: Once I got diagnosed with it, I was scared because I had never had a surgery before in my life. I didn't know what cancer was. I've heard of it, but I didn't think it'll come to me, and it scared me to death.

John Burke: The original number that excited the doctor to have me recheck it was a 5.1. After 90 days it had gone to 5.7.

Ken Ma: I was scored a Gleason 5+4, and when I understood what that meant, it was a very big shock.

Doug Kroc: My PSA number was sky high. It was off the charts.

Michael Salvadore, Jr: He said to me, "Your PSA is 66." I was pretty ignorant then about what PSA meant. And I asked him, "Well, what does that mean?" And he said, "Well, anything over four is likely, and he drops the word, bam."

Phillip Lavender: That reality set in on me and I was just hearing the word C, kind of freaked me out in a sense because I didn't know what was going on. I would diagnose stage 1 prostate cancer.

John Burke: I waited to get advice from what was my primary care physician. He immediately saw that, and brought me in for a consultation, and we discussed what the numbers meant.

Mark McLain: I was just all wanting to hear what he had to say and I realized, "Boy, I know nothing about what he's talking about."

Joseph Samulenas: I had no idea where to go, what doctors were good, what facilities were good.

Rickey Lee: I didn't know how to feel. I didn't know which way to go. I was trying to take the journey by myself, and that was the wrong way.

Michael Salvadore, Jr: Since then, I've been on what I consider to be a great journey.

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